Wakefield's "Vaxxed" Demands Less Safety

"This is not an anti-vaccine movie. We're just going to use ominous imagery to make people scared of vaccines."
- Del Bigtree, Vaxxed Producer [My paraphrase.]

This past weekend, Andrew Wakefield's factitious documentary Vaxxed: From Cover-Up to Catastrophe premiered in New York City at the Angelika Film Center, after being dropped from the TriBeCa Film Festival. A number of reporters and skeptics attended the film, live-tweeting the experience and writing up reviews of the movie afterward. You can read reviews at The Hollywood Reporter, STAT News, The Guardian, The Daily Beast, Indiewire, and others. The central story of the film, such as it is, is William Thompson and the CDC. For background on the saga, please read this reference guide. (As an aside, even though the impetus behind the film is William Thompson, the CDC researcher does not appear anywhere in the film. Instead, the audience is left with only recorded phone calls between Thompson and Brian Hooker. The transcripts were released last year in a book, which was discussed here, here, and here.) The movie alleges that the CDC covered up evidence that vaccines cause autism. However, according to William Thompson's own documents, which Matt Carey has kindly made publicly available at his blog Left Brain Right Brain, there was no cover up.

I have yet to see the film, so I will leave you to read those other reviews. Instead, I wanted to focus on a list of "demands" at the end of the film, helpfully posted by a Wakefield supporter on Twitter. The four demands would do little to help children or people with autism and would instead run counter to what the anti-vaccine community wants.

Massachusetts Steps Closer to Expanding Autism Support

Massachusetts State House
Source: Fcb981/Wikipedia

When someone receives a diagnosis of autism or a related disorder, it profoundly impact the individual and their family. Depending on the severity, they may need only minor assistance or extensive services. Some may be able to live independently, while others require round the clock support. There may be other concurrent medical or mental health conditions, as well. In far too many states, autistic individuals fall through the cracks. It's only recently that states have started to enact legislation aimed at reforming health care coverage for those with an autism spectrum disorder or other developmental disability.

Massachusetts is the latest state that is close to expanding coverage and support for people with developmental disabilities. The state house of representatives unanimously passed a bill (H.4047 - An Act relative to assisting individuals with autism and other intellectual or developmental disabilities) that does a number of things that will hopefully improve the quality of life of those individuals and their families. The senate passed a similar version of the bill (S.2245, reprinted as S.2257), also unanimously. The next step is a compromise bill, then it's off to the governor for signature.

Autism Speaks Sounds the Fear

An unusually warm winter evening. Mid-January, no snow on the ground and the sky overcast, with the light nearly gone and nigh setting in. One the damp street, cars carried their owners homeward in a dense pack, heading down the hill toward the river. As I neared the plaza for the event (the screening of a new documentary), a small cluster of individuals with signs were gathering on the sidewalk at the entrance. Since I was running a bit late, I did not stop to talk, though I had wanted to. They were members of an advocacy organization there to protest the organization that made the film.

On Wednesday, January 15, Autism Speaks, in conjunction with Massachusetts General Hospital's Lurie Center for Autism, held a screening of their new documentary, Sounding the Alarm. The group out front were autism self-advocates who were protesting the film because they feel that Autism Speaks siphons off funds from local communities through fundraising, then gives very little back, as well as their use of negative imagery and words. According to the Facebook event page, the film is described as resorting "to rhetoric of fear, pity, tragedy, crisis, and burden to talk about autistic people".

At any rate, I made my way into the conference center where the screening was held, found a seat, and settled in to see just what all was in the film.

For Graduate Practicum, George Washington University Earns an F

Recently, news came out that Mark Geier, the man who tried to treat autistic children's autism by using a powerful drug that suppresses testosterone (essentially chemically castrating these children), the man who lost every one of his twelve state medical licenses and had a 13th denied due to his medical misconduct (to put it lightly), served as a site preceptor for a graduate student at George Washington University. Autism News Beat rightly criticized the university. That Geier was able to serve as a preceptor for a student is pretty damning, since it means that GWU did not do its due diligence to ensure that individuals who apply to be a preceptor meet certain minimum standards. Either that, or someone at GWU was actively promoting Geier's nonsense.

The problem is that a site preceptor has a number of responsibilities, according to the GW SHHS Practicum Site Preceptor Guide:

1. Visit the Practicum Website http://www.gwumc.edu/sphhs/studentres/practicum/index.cfm and Register. (See Register: for instructions)
2. Review and approve the Student’s Practicum Plan
3. Negotiate payment/stipend with Student, if applicable
4. Engage student in work and provide constructive feedback and guidance to the student
5. Provide guidance for professional conduct
6. Complete the following on the Practicum Website:
   a. Midpoint evaluation form in conjunction with the student
   b. Final site preceptor evaluation of student and practicum
7. Address student’s reports of problems, including site safety issues and/or harassment

Take note of numbers 2, 4, 5 and 6. Mark Geier is not fit to fill those responsibilities, having been stripped of his medical licenses and being found by several Special Masters of the vaccine court to lack expertise in many different areas relevant to epidemiology, biostatistics and immunology. Coupled with his lack of medical ethics, it is grossly irresponsible to allow him to serve as a site preceptor for any student. Orac and Reuben Gaines have both chimed in, as well, castigating George Washington University for allowing this to happen.

And now it looks like GWU has taken notice.

CBS Sympathizes with Murderers

Back in June, I wrote a post in which I tried to understand the murder of Alex Spourdalakis by his mother, Dorothy Spourdalakis, and his caretaker, Jolanta Agatha Skrodzka. In particular, I noted how those who do not blame vaccines for autism properly blamed Dorothy and Jolanta for the murder, expressing sympathy and horror on behalf of Alex. Yet among the biomed and "vaccines cause autism" communities, the general spin to the story was that Dorothy was oh so distraught and just couldn't cope any more; because she had supposedly been failed by the system, poor woman that she is, she resorted to murder, putting Alex out of his misery. That is a horrible, horrible insult to a boy who suffered the ultimate abuse by those who were supposed to care for him.

That sentiment, sympathizing with a child murderer, disgusted me then and disgusts me now. Part of the tragedy of this whole thing is that we only have Dorothy's voice being heard. HIPAA regulations block any revelations from the medical professionals being vilified by murder apologists at Age of Autism, Autism Media Channel and so on. Alex's voice has been permanently silenced. To make matters worse, CBS This Morning has decided to lend their support to Alex's killers.

Follow-up on Journalist Matthew Mientka

Last week, I wrote a post in response to an article by a journalist named Matthew Mientka. His article was an illustration of sloppy, lazy journalism (though I suppose to be charitable, he may also have been overworked by Medical Daily's editors, though that just speaks even worse for the online paper). Mientka's post was so riddle with errors that could have been avoided with just a modicum of basic research. As I ended my post, I said that if he did the right thing and retracted his article, I would write a follow-up post.

Well, his article is no longer up (note I have an update at the end of my post with a link to the cached version). He does, however, have a new article up that includes a little of the original, but goes beyond that to discuss autism, MMR and thimerosal in a more expansive manner. The version that is currently up, however, is not the original.

Matthew Mientka, MMR, Autism and Lazy Journalism

I try to be a patient person. In general, I give people the benefit of the doubt, assume that they are well-intentioned. And for the most part, I think people do try to do what is right. But every now and then, I find that my trust is misplaced. It isn't necessarily that they are malicious. No, they may just be lazy, failing to do due diligence when really they ought to do at least some measure of basic research.

Such was the case recently. I came across an article by Matthew Mientka in Medical Dailty titled Vaccines And Autism: Evidence Shows ‘Strong Link’ Between Autism And MMR Vaccine. When the post originally went up, the title was a bit different: Vaccines And Autism: New Evidence Shows 'Strong Link' Between Autism And MMR Vaccine. Notice the very slight difference? The word "new" was dropped after I called the author on some errors in his article.

Struggling to Understand the Murder of Alex Spourdalakis

Ever since I heard the news early last week that a 14-year-old autistic boy was found dead, I've been struggling to put into words how I feel and my thoughts on the issue. I got the news in rapid succession: he was found dead, he was stabbed multiple times, his mother and godmother were found in the same room, unconscious. More digging through the news: he was stabbed four times in the chest (twice of those in the heart) and his wrist was slashed nearly to the point of taking off his hand. His mother and grandmother were under the influence of sleeping pills, having taken a non-lethal overdose. They left a three-page letter explaining that they had planned over a week to kill the boy. More news reports revealed they first tried to kill him with sleeping pills, but then went for the knife when the pills didn't appear to work. The godmother also killed the cat "for fear he would be sent to a shelter". Then they wiped the knife clean, put it back in the kitchen and took sleeping pills for themselves. The two women reportedly confessed to police that they had murdered the boy, and they have been charged with first degree murder. It also came to light that the boy's mother had filed for divorce from his father in February, with a court date set for this coming Thursday, June 20. It was the father and uncle who caused the boy to be found, after failed attempts to reach the mother and son for a well checkup.

In the months leading up to the murder, the mother, Dorothy Spourdalakis, with help from Age of Autism's Lisa J. Goes, appealed to others for help for her son, Alex. Per Goes' writings (and others), Alex had been taken to the hospital for severe gastrointestinal symptoms (constipation, diarrhea, pain) and had been held in restraints, naked. If their reports are to be believe, he was kept in the ER, strapped down, for 19 days straight. As others have pointed out, the narrative sounds like some key information is either misrepresented or missing. For example, it is highly unusual for a patient to be kept in the ER for an extended period of time. They would either be treated and discharged or they would be admitted to inpatient care. Further, use of restraints on patients is highly regulated. If Dorothy and Lisa's accounts are correct, not one, but two hospitals inappropriately used restrains (three hospitals, if you include Alex's second, more recent admission). Part of Dorothy's petition for help was to get the hospitals to provide gastrointestinal treatment, which included a colonoscopy, which was deemed unnecessary by an attending gastroenterologist that examined Alex. There is some suspicion that the procedures Alex's mother wanted for him included dubious biomed treatments. Some also suspect that she may have subjected Alex to MMS (bleach) enemas in an attempt to cure him of his autism. News outlets report that Dorothy was offered services for her son, which she rejected. Supporters claim the services would only have been admittance to a psychiatric facility and drugging Alex to keep him docile. Others think that it would more likely have been day or residential care.

Unfortunately, due to HIPAA privacy regulations, we only have one side of the story, told by Dorothy and her supporters. The hospitals cannot comment on any aspect of Alex's care without violating patient confidentiality laws, though the pending trial may reveal more information. We can't know for certain what treatment he received in hospital, nor the exact nature of the services that were offered. I'm not going to speculate on what treatment he did or did not receive, either at the hands of his mother or at the various hospitals to which he was taken. Rather, I want to focus on the murder itself and how people have reacted to it, including myself.

Mark Geier: Not a Leg to Stand On

Poor, poor Mark Geier. For those who don't know, Dr. Mark Geier is half of the father-son team that developed the "Lupron Protocol" for treating autism. Put simply, Geier and his son came up with the scientifically unsupported idea that testosterone and mercury bind together in humans, allegedly causing autism. His treatment for this involves dosing children with leuprolide, followed by chelation. Leuprolide (also known by the brand name Lupron) is legitimately used for treatment of precocious puberty and as part of IVF treatment. It is also used off-label to chemically castrate sex offenders.

Dr. Geier, through his Institute of Chronic Illness and Genetic Centers of America, misdiagnosed autistic children with precocious puberty so he could claim that he was using Lupron on label, rather than for an unapproved, experimental indication (i.e., autism). This also allowed him to bill insurance companies for the lupron. His actions got him into hot water with various state medical boards, starting with his medical license in Maryland being suspended on April 27, 2011. Since then, one by one, 11 of his 12 medical licenses were suspended, an application for a thirteenth license in Ohio was denied, and some of those suspensions became complete revocations. The last actions I wrote about were the revocation of his license in Missouri and suspension of his Illinois license. At the time, the only state left in which Dr. Geier could practice was Hawaii.

As of April 11, 2013, that is no longer the case.

MIND Institute: No Difference in Immunization Rates

There are a lot of studies on vaccines and autism. The majority (read: the ones that are well-designed to minimize the influence of biases and confounders) show that there is no connection between vaccines and autism. Or, rather, I suppose I should use a more scientific turn of phrase: they have failed to find any causal connection between the two. There are some rather bad studies (small sample sizes, methodological flaws, etc.) that anti-vaccine activists like to crow about, like a horribly flawed macaque study that should never have been approved by an IACUC (IACUCs are institutional ethics boards that review studies using animals) in which there were not enough controls, missing conflict of interest statements, missing authors, and so on. In short, it put a bunch of macaques through needless procedures and death for no reason.

Of course, the anti-vaccine folk invariably pooh-pooh the rigorous studies, saying that they are horribly tainted and unreliable, the authors in thrall to Big Pharma^TM. As they rationalize away any study that doesn't agree with their near-religious adherence to their preconceived notion that vaccines are the most evilest of all evilosity, they call for "independent" research looking at vaccines and autism. However, finding what they consider to be independent researchers is a bit dicey. Funded by NIH or equivalent governmental agencies? Nope. After all, government is in league with Big Pharma^TM, dontcha know. Universities? Doubtful, since a lot of universities receive grants from corporate foundations. It doesn't matter that the researchers don't actually see any of that money, of course. The merest hint of a whiff of a connection is enough for them to dismiss anything that doesn't agree with their ideology. Is there any organization that they'll trust that actually has qualified researchers who don't stand to gain from finding a vaccine-autism connection?

Well, they might be okay with the University of California-Davis MIND Institute.

Why Do I Do This?

The other day, I received an email from someone via my other site, asking why I do this. Why do I speak out against anti-vaccine myths and put so much time and effort into that site (and this blog), when I state I have no financial ties to any pharmaceutical companies. Is it just a "labour of love because [I am] concerned for humanity"? Where does my passion come from? What intrigued me about this was that it came shortly after my experience with the Vermont Digger and the Vermont Coalition for Vaccine Choice, the latter of whom, along with Laura Condon of the National Vaccine Information Center, accused me of being a Pharma Shill^TM and/or paid by Dr. Paul Offit. And certainly there are hints that the non-vaccinating individual who emailed me suspected that, my honest statements notwithstanding, I really was paid to write and comment.

Just to reiterate, I receive no money or any other compensation from a pharmaceutical company to write about vaccines in any manner. I hold no stocks (unless there happen to be some in the mutual funds in my retirement account, over which I have no control). I receive no checks, dinners, or quid pro quos. A kind fellow by the moniker Eric TF Bat kindly provided me with hosting space on his domain for my AntiAntiVax site for free after several fellow commenters at Phil Plait's Bad Astronomy blog recommended I turn one of my comments into a web site so people would have a permanent place to point people to when countering anti-vaccine myths. I don't know Eric outside of that context. As for my blog, well, it's hosted by Blogger (clearly), which is also free. I have paid for my domain name out of my own pocket. And I use my own free time to write. Some people garden. I blog. So there's my financial situation regarding my countering of myths and misinformation regarding vaccines. I don't get squat, and I would not accept any money from a pharmaceutical company, either, even if they offered it to me.

So, if I don't get paid, why the hell do I do this?

The Continuing Fall of the House of Geier

Most of you no doubt know the names of Dr. Mark Geier and his son, David Geier. I've written about them a fair bit, starting with the suspension of Mark Geier's medical license in Maryland and following the saga as his licenses in various states were suspended and, eventually, permanently revoked. Mark and David are the duo who came up with what came to be known as the Lupron Protocol to supposedly treat autism. Following on the mistaken notion that thimerosal in vaccines causes autism, they developed their idea after reading a single study from 1968 finding that, when dissolving testosterone and mercuric chloride in hot benzene, the testosterone and mercury compound bind together. Ignoring the fact that living beings are not in the habit of having a hot benzene environment inside them, the Geiers coupled this testosterone-mercury complex idea with research finding that autism may be linked, in some cases, to high levels of testosterone. Needless to say, their protocol not only didn't work, but it put children at increased risk for no benefit. And to make things worse, since Lupron is not approved for the treatment of autism, Dr. Geier "diagnosed" his patients with precocious puberty so he could charge it to insurance companies.

At any rate, Mark Geier's medical career is pretty much shot. But I always wondered what, if anything, would happen to those who worked at his numerous, nationwide clinics? Would any of them be held accountable? It looks like at least one of Geier's partners is not faring too well, either.

Happy (Belated) Blogiversary

So, I missed my own blogiversary yesterday. At least I remembered it was sometime in February. At any rate, three years ago, on February 5, 2010, I started this blog. Back then, it was name Silenced by Age of Autism. It was an apt name at the time, since my primary intention was to give people a voice to post their comments that the editors at Age of Autism blog censored. I had attempted to engage Kim Stagliano and some of the other commenters over at AoA in reasonable discussion. I followed their commenting guidelines. I kept my tone civil, even though I disagreed with what they were saying, and yet they saw fit to ban me. And even though I asked, I still have not received any answer.

Not that I need one. Age of Autism is an echo chamber of anti-vaccine conspiracy-think. The editors want to give parents who mistakenly believe that vaccines cause autism a "safe" and "comfortable" place to gather. By that, they mean no dissenting opinions; no questioning of the status quo. Such things might make people feel uncomfortable (having their beliefs questioned) and, horror of horrors, it make them actually think, and no one enjoys that. So instead, if it looks like someone can pose a serious threat to the calm, tranquil, hate-fueled environs of AoA, they are silenced. That's how it all started, but things have changed.

It's That Time o' Year

As the title says, it's that time of year again. Many holidays just happen to fall right around now: Christmas, Hannukah, Kwanza, Saturnalia, Festivus, Solstice and so on. Some of these involve the giving of gifts. Some do not. Some parts of the world lie covered in snow and ice (unless you happen to be in certain parts of New England this year and haven't seen any dusting of snow stick around...not that I'm bitter or anything). Some celebrate with a glass of wine in the sun. It also just happens to be the end of the tax year.

I brought this up a couple years ago and thought it could use a bit of a repeat.

Calling on Congress to Do the Wrong Thing

Oh, Age of Autism. Once again, this rag that calls itself a web newspaper of the autism epidemic ignores science and providing real help and support for families with autism in favor of unsubstantiated hyperbole and appeals to politics. Since they do not have actual science behind their claims, they try to use political means to get their way, freely ignoring reality.

Feeling that, perhaps, they made some small victories after the recent Congressional hearing on autism, the fact-challenged are making some demands suggestions to our legislative body. In a post titled Top 10 List for Congress Post Autism Hearing, contributor Laura Hayes addresses Congressman Bill Posey (R-FL) and includes a list of ten things she would like Congress to do. I'm not quite certain whether to chuckle at how inane it is or worry, since the hearing included more than one science-challenged Congresscritter.

Rob Schneider's Hellish Nonsense

Thursday night, I mentioned that Rob Schneider was going to be on Salt Lake City's KXRK morning radio show Radio From Hell to promote his stand-up show Friday night at Wiseguys West Valley City. I joined Skepchick's Elyse Anders in urging people to contact the station if they had a call-in segment during the interview. Orac also put the word out about this appearance.

Well, I was fortunate enough to find time to listen to the show Friday morning via their internet live stream. As noted by Elyse, Schneider had been on the show before, shamelessly spouting a bunch of tired, well-worn anti-vaccine lies and myths. This morning, he was a bit late showing up at the studio, which I don't blame him for; it was early, he mentioned he only had about 3 hours sleep, and we don't know what his travel and traffic situation was.  The hosts, led by Bill Allred, pondered whether they should just rerun the clip (mp3 hosted at Skepchick) from the last time he was on.

At any rate, he finally showed up to sit down for a chat...

Parental Age, Autism and Schizophrenia

I first heard about some interesting news a couple days ago on Twitter. An acquaintance of mine, @UAJamie posted a link to a New York Times article reporting on some very recent research into possible causes of disorders like autism and schizophrenia. In the past year or so, there have been studies suggesting that the age of the parents may play a role in the risk of autism, but no clear connection has been made, let alone any reason that such should be the case.

In "Father's Age Linked to Risk of Autism and Schizophrenia", we learn about a new study finding that the older the father (but not the mother) is, the greater the risk of autism and schizophrenia. The reason? The older the father is at the time the child is conceived, the greater the number of genetic mutations. A very interesting finding, but it raises some questions. Unfortunately, the full article published in Nature, Rate of de novo mutations and the importance of father's age to disease risk, is behind a pay wall, so I have to rely on the abstract and news reports. With that in mind, let's dig in.

You Have No Voice

It's been a while since I've written about something I've read over at the Age of Autism blog. Frankly, I haven't frequented it nearly as much lately, partly because they have steadily drifted more and more into the fringe, with posts that simply boggle the mind. I will readily admit that I do admire the passion that they bring to the table, but that is no justification for the vitriol, misinformation and outright quackery they frequently promote. What drew me over there this morning was learning that an autistic adult, writing under the 'nym Autistic Lurker, had made some comments there and, as is usual with the AoA crowd, getting piled on, criticised and accused of not being who they said they were. This was on a post by Dan "I can't find the Amish autists" Olmstead titled The IACC (I Am Completely Clueless) Meets Again . The post basically amounts to a diatribe about how the Interagency Autism Coordinating Committee is a horrible bureaucracy (granted) that is wasting its time and money following scientific evidence rather than, as all the folks at AoA just know is true, doing research proving that vaccines did it.

If you're interested in a long, long wall of text that amounts to, "Why won't you do what a very small portion of the autism community wants you to do!?", click on the link above and take a gander. I'm not going to go into detail about it. Rather, I'm going to talk about one of the comments on the post. It's a comment that, when I read it, I was, quite literally, stunned. For several moments, I could do nothing but stare at my monitor. This was followed in quick succession by feelings of disbelief, disgust and outrage. The comment encapsulates the derogatory view that, it seems, many in the AoA echo chamber have of disabilities in general and autism in particular.

Guaranteed Autism Prevention! Oh, really?

There's no doubt that autism represents a significant health issue, not just in the U.S., but around the world. Current estimates put the prevalence of autism spectrum disorders (ASD) at around 1 in 88 children. Over the years, awareness of ASDs has increased; tests and diagnostic tools have been developed that can detect ASDs earlier and within a wider range of severities; and diagnostic criteria have shifted, generally leading to more inclusive criteria, meaning that a greater number of less severe cases are diagnosed. For those families dealing with more severe autism, the burden can be incredible, physically, emotionally and financially. Frequent, violent behavior from those more severely affected, as well as bolting or self-injurious behaviors, can wear a person out very quickly. Going out is often difficult, due in part to the needed vigilance and in part because of the lack of understanding from members of the public; families tend to withdraw and become isolated, lacking the emotional support they need day by day. States are beginning to enact legislation that requires insurance companies to cover certain autism treatments, but there is still a long, long way to go to ensure that those who need services get them without undue financial burden and stress. Even with good health coverage, there may be other costs to bear, such as respite care or remodeling of the home space to meet the needs and challenges of autistic family members. (This is not to say that all people with ASDs deal with this level of hardship; there is a broad range, from those requiring professional support to those who are "quirky".)

Thus it should come as no surprise that wanting to prevent autism in the first place would be a godsend. Part of the difficulty, however, lies in the fact that, to date, we know very little about the causes of autism. We know about congenital rubella syndrome, Fragile X and Reyes' Syndrome as causes of ASDs, and current research strongly hints at multiple genetic and prenatal factors that could play some role in ASDs. But without solid understanding of how autism comes about in the first place, there is not a whole lot that we can do to prevent it.

Enter Dr. David Berger of Wholistic Pediatrics in Tampa, FL. Dr. Berger was interviewed by Heather VanNest, an anchor with WTSP 10 News, in an article titled How to prevent autism: 3 ways to lower the risk.

How Not to Make a Fool of Yourself on the Internet: A PSA

It seems that there are people out there who may, perhaps, lack a certain understanding of just how the internet works. They may write some ill-advised comment which draws well-deserved criticism. They might follow this up with additional statements which serve only to attract more criticism, with a big ol' side of humiliation. Maybe they do not realize that in the internet, nothing is truly erased.

And so it is that I find myself here, offering up some advice to the poor, self-centered, crass, ignorant folk on the internet. Even though doing so may rob myself and other bloggers the entertainment of invoking the Streisand Effect, I feel that there are those who may benefit from some instructive illustrations.